Print impairment – the language of hope

visual impairment logo

A new phrase has appeared in JISC World. Print impairment. It describes difficulty with accessing text-based resources. Alistair McNaught writes ‘Between 10-13% of people in the UK … have difficulty accessing text-based resources, varying from dyslexia through to visual impairments and motor difficulties.’

The source of this figure is uncertain. 2020 Vision is cited but they have no reference. The RNIB estimate over 2 million people experience sight loss  while Dyslexia Action say approximately 10% of the population is thought to be dyslexic with a total of two million people severely affected. There will be cross overs between these estimates and also all those who’ve not been counted.  Print impairment is likely to be more prevalent than we realise.

The JISC post is about digital exams. Rather than extra time, extra readers, extra rooms or DIY digital versions of exam papers, the Ofqual (Office of Qualifications and Examinations Regulation) now  requires ‘awarding bodies to offer digital copies of exam papers for print-disabled learners’. Here the language reverts to the D word which is a shame. More on this at later.

Digging through the literature the initiative appears directed at schools but the JISC paper Making the most of accessible exam papers highlights potential problems which are applicable anywhere technology is used for education. The files provided by awarding bodies will be available as PDF so the onus is on the institution to ensure compatibility with assistive reading tools and support for the accessibility features of Adobe Reader. As with all things digital, this is not without complications. Laptops used during exams must meet the security requirements of awarding bodies and staff who teach and support learning will need confidence with operating in assistive technology environments.  While JISC suggest ‘Extra time taken in updating staff skills and giving learners good technology training should be outweighed by the reduced support needs of learners.’ anything which involves additional work load plus digital engagement is likely to be unpopular. The paper recommends disability support teams  ‘train learners to make the most of examination papers in PDF format.’ The term ‘train learners’ is terrible. What happened to educate? But aside from the pedantics, this suggestion replicates and reinforces what has always been wrong with disability education – the responsibility for accessible practice is seen as belonging elsewhere. It’s something which is done by a few for a few rather than inclusion being a mainstream philosophy and practice. The term print-impairment offers hope but print-disability takes us right back where we started from.

At least the post re-acknowledged the value of digital environments. It isn’t possible to over emphasise these.  Digital text provides the ability to change colours, magnify text and images and navigate swiftly through a document – things that significantly reduce the barriers for people with print impairments. What isn’t mentioned is content has to be designed inclusively for this to happen!

These are key messages which are still largely unheard and unacknowledged. As always the message from JISC World looks good on the surface but dig deeper and the potential for inclusive practice risks erosion from a lack of understanding about the inclusive value of digital resources and the wider – even greater – challenge of resistance to change.

It’s all about the language we use…

The Equality and Human Rights Commission have published their inquiry into disability-related harassment. This is what the media call ‘hate crime.’ It is violence perpetrated against vulnerable members of society who are unable to stand up for themselves or have friends or relatives to protect them. The inquiry highlights ten cases where people died or were seriously injured and the EHRC are calling this harassment.

The OED says to harass is ‘To wear out, tire out, or exhaust with fatigue, care, trouble, etc.’ and the act of harassing is to ‘To trouble or vex by repeated attacks.’

Surely crime towards people disabled resulting in serious injury and death is far more than harassment?  By diluting the language in this way the EHRC are diluting the effectiveness of the message. This is not harassment; it is aggravated assault and murder and those who have lost their lives and been injured in these dreadful ways deserve much better than this.

PIP1

The Equality Challenge Unit (ECU) website have produced a document  ‘Implications for Higher Education Institutions’ referring to the Single Equality Act’. They also have a useful link on their home page How can academics ensure the materials they produce are accessible for all students?

The Single Equality Act is a complex piece of legislation; there are nine areas against which it is illegal to discriminate and HEIs still have the responsibility to make ‘reasonable adjustments’ in order to ensure a disabled person is not treated less favourably than a non-disabled one. The word disabled is in itself contentious. It doesn’t make explicit that being ‘disabled’ is about society and not the individual, that being disabled is about being denied access to participation through  society’s failure to recognise sufficient categories of difference. The external social environment functions at the level of the majority or the level of the individual who is operating as the provider of ‘goods, facilities, services and public functions’.

With regard to virtual learning environments this is about the MEE Model. The person creating and uploading digital content using Mouse, Eyes and Ears and assuming everyone accessing that content is doing the same – when this might not be the case. As we head towards the start of a new academic year, it’s worth revisiting the subject of promoting inclusive practice with digital data. Look out for PIP2 following shortly 🙂

nuff said…

December 3 was International Day of People with disabilities. You could be excused for not noticing. A quick survey of online newpapers revealed the following:

  • The Guardian reported on an enquiry into disability related harassment, mentioning in the penultimate paragraph that the inquiry was announced on the United Nations International Day of Persons with Disabilities.
  • The Independent celebrated 1000 days to the paralypics saying ‘Fittingly, today is also International Day of People with Disability (IDPwD) … a worldwide celebration recognising the contributions and achievements of people with disabilities…’  The UN say the day is about achieving ‘human rights and participation in society by persons with disabilities’ so it’s about dignity and justice for all rather than just the Paralympian elite.
  • The best the Telegraph could do was a story about an Australian budget airline refusing a blind passenger and guide dog board a domestic flight with a strapline reference to the International Day of Disabled Persons.
  • In the Daily Express you could read how Stevie Wonder is now a United Nations Messenger of Peace, with a special mission to help people with disabilities, but no mention of the significance of printing the story on December 3rd.

The Times and the Daily Mail seemed to have forgotton the day altogether and I didn’t anticpate missing much by stopping there. The British press could have done so much more to highlight the inequalities of daily life for those with sensory, motor and cognitive impairment. Lets hear it for the voice of the people rather than the voice of the establishment performing yet another cover up job.

Spot the difference…

Spot the difference between these two statements:

  • International Day of Disabled Persons.
  • International Day of Persons with Disabilities.

In 1982 the UN General Assembly decided on the World Programme of Action for Disabled People. In 2007 the official title of the Day was changed from International Day of Disabled Persons to International Day of Persons with Disabilities. Still contentious but at least it reflects the move from medical to social models of disability; a change from the association of the word disability with the deficit ‘can’t do’ (caused by the individual impairment) to the positive ‘can do’ (enabled through social change).

Language is  important. We speak and attribute without thinking; we’re all subjects of Foucauldian discourse whereby ‘truths’ derive from external structures of control, legitimised and maintained through behaviours, beliefs and attitudes. Reference to disabled persons is incorrect. We are all persons. The reasons I may not use a computer mouse could be cerebral palsy, stroke, arthritis, broken bones or because I simply can’t see the cursor. To label me a disabled person because of limited physical or cognitive capacity is wrong. This is not being pedantic – its being aware of difference. Identity is on the surface; it’s what’s underneath that counts.

banned!

[kml_flashembed movie="http://www.youtube.com/v/ExYRBmt4jaQ" width="425" height="350" wmode="transparent" /]

 Sarah’s Story is a 90 second video designed for television and banned by Clearcast, the television watchdog, as containing images that were ‘too distressing’. The aim of the advert was to raise awareness of Motor Neuron Disease. Thankfully, by banning it, Clearcast have increased publicity of both MND and the MND Association. Its wrong when the reality of disease, deformity and disablement is considered ‘too distressing’ and something we should be protected from. It should be the other way around. Every application of the label disability involves a person and these attitudes both devalue and diminish status. For more information about the ban see the Telegraph 25/07/09  and the Transcript from You and Yours, Radio 4 30/07/09 

simulations: a personal perspective

Treatment for a recurrent sight condition renders me temporarily visually impaired; a situation that can last for weeks, even months. Details get blurred and out of focus, there are no sharp lines or clear distinctions. Because it affects one eye more than the other I can manage but the lived experience of being denied access to text and images and video – albeit instructional, informative or for fun – is both challenging and informative. I realise at first hand how short term simulations may give a temporary insight but can’t replicate the unified whole – it’s the gestalt principle in action. Computer simulations show the part but they can’t show the sum of the parts. They can’t represent the levels of tiredness and the exhaustion of trying, the frustration of not achieving and the isolation of missing out on what everyone else is sharing. You think you know what something is like but to adapt the adage – it’s no good wearing someone else’s shoes – you have to walk in them too.

I suspect that with visual information; in particular digital data, we design following a ME Model (MEM). If we can access it then we assume others can too. We also resist change in practice. Habits get engrained. I’ve listened to a screen reader repeat file names for a pictures that tell the user nothing about their content yet if I know that if I’m in a hurry then I’m equally guilty of not adding meaningful alternative text to digital images.

There is a paradox in educational technology where the potential to widen access is undermined by a dependency on inclusive design. As the use of virtual environments increases, so the gap between public policy and private practice grows wider. Digital data reflects social and cultural norms and lived experience. Those who create and upload content are often influenced by their own needs and requirements rather than anticipating those of their audience. Access to this information is then limited by the forms in which it is made available. This approach disadvantages users who are unable to access electronic data available only in single or fixed formats. Legislation alone is not enough to outlaw discriminatory attitudes. Promoting inclusive design involves challenging perceptions in order to make explicit the rationale behind the need to alter existing practice. As Jane Seale says in eLearning and Disability in Higher Education (2006) if the responsibility to be proactive is not more widely adopted then the same educational technology that is used to widen participation will in itself become a restriction.

Disability Research Conference 2009, Leeds Met

Blogging after the event is difficult on the one hand because other ‘things’ take over but on the other hand ‘things’ that stay are those with the deepest impact so maybe waiting before blogging is one way of identifying the most ‘bloggable’ bits rather than posting stream of consciousness ramblings. The Disability Research Conference at Leeds Met on 22 April raised my awareness of a debate around the use of simulations to demonstrate disability. I’m developing a workshop on promoting best practice in the design of electronic documents and was intending using simulations to produce disorientation for raising awareness of potential barriers to access. Hearing several people speak against this, I turned to the JISC Dis-forum list for advice and from the received responses I’ve compiled this summary and list of resources.

Summary: The prime reason for not using simulations is concern that they may cause misconceptions thereby creating additional barriers rather than reducing them. Simulations detract attention from the individuality of the user; everyone has different mechanisms for dealing with impairment and a generic simulation – while demonstrating the barrier – doesn’t (can’t) address lived experience.

The balance to this is that while simulations can be considered offensive (How can you possibly ‘know’ what it’s like) they do offer experiential insight which raises awareness of potential barriers thus encouraging change in practice. The most acceptable alternative appear to be the use of existing literature and video as demonstration rather than a temporary replication of impairment which can only ever fall short of the reality.

Apologies for the print size – it will increase using browser text size settings under View on the menu bar.

Online simulations

 

·          SimDis by Techdis http://www.techdis.ac.uk/index.php?p=3_14 

·          Vischeck colour blindness simulation http://www.vischeck.com/   

·          WebAim Screen Reader Simulation http://www.webaim.org/simulations/screenreader.php

·          WebAim Low Vision Simulation http://www.webaim.org/simulations/lowvision.php 

·          WebAim Dyslexia Simulation http://www.webaim.org/simulations/dyslexia.php

·          WebAim Distractability Simulation http://www.webaim.org/simulations/distractability.php

·          Active Learning in Computing (ALiC) Computing Science CETL, Leets Met http://www.leedsmet.ac.uk/inn/alic/CAATest/

 

·          Loughborough DsylexSim (not free) http://www.lboro.ac.uk/service/publicity/news-releases/2005/68_dyslexia.

 

Articles

 

·          Burgstahler, S., and Doe, T. (2004). Disability-related simulations: If, when, and how to use them. Review of Disability Studies, 1(2), 4-17. http://staff.washington.edu/sherylb/RDSissue022004.html

·          Flower, A., Burns, M. K. and Bottsford-Miller, N.A. (2007) Meta-Analysis of Disability Simulation Research. Remedial and Special Education, 28, 2: 72-79.

·          French, S. (1992) Simulation Exercises in Disability Awareness Training: A Critique. Disability and Society, 7,  3: 257 – 266.

·          Papadopoulos, G and Pearson, E (2007) Accessibility awareness raising and continuing professional development: The use of simulations as a motivational tool. ALT online newsletter 2007: 7 http://newsletter.alt.ac.uk/e_article000735502.cfm

 

Internet

 

·          The Wrong Message by Valerie Brew-Parrish (1997) http://www.ragged-edge-mag.com/archive/aware.htm and The Wrong Message update (2004) http://www.raggededgemagazine.com/focus/wrongmessage04.html

·          Smith, J.W. (1997) Disability Simulation That Works. The Braille Monitor 40, 4 http://www.nfb.org/Images/nfb/Publications/bm/bm97/Bm970411.htm

visual impairment

Supporting visually impaired people using the internet highlights how little attention is paid to ensuring websites are accessible. It’s frustration overload; as if finding your way around the keyboard isn’t difficult enough you are then reliant on ‘listening’ to a disembodied electronic voice reading out the html sitting behind the website. It can’t make assumptions or use previous knowledge; it can only read what the designer has put there.

Online information is still designed primarily to be a visual experience. There are standards and guidelines galore but wouldn’t it be easier to ask a visually impaired person what works and what doesn’t work?

A leading supermarket has done some work on making its online shopping site accessible to the visually impaired. BUT there are still problems. It’s 2009. What happened to compliance with disability legislation that started over a decade ago? Why is it that the most vulnerable members of our society – to whom internet access can offer opportunities to re-engage through digital data – are still being discriminated against?

It’s not a technical issue; it’s a human one – it’s a social, cultural and political one. The Internet could be fully accessible and it isn’t; and that reflects badly on everyone of us working with virtual environments.